We are building a speaker program and are looking for LVAD patients and caregivers who want to share their story to LVAD support groups.
LVADStrong is creating a volunteer speaker network to bring real patient and caregiver voices into hospital and community support groups. If you are interested, we would love to learn about your journey and what you would feel comfortable sharing.
What we are building
We are developing a simple, supportive way for LVAD patients and caregivers to speak with others who are living through the same thing. The goal is to make every LVAD support group feel more human, more honest, and more helpful, while promoting empathy in healthcare for patients, caregivers, and clinical teams.
This program is in development now. We are recruiting an initial group of volunteer speakers to help shape it.
Who we are looking for
You might be a fit if:
- You are an LVAD patient or caregiver
- You are willing to share parts of your experience in a respectful LVAD support group setting
- You want to help other patients and families feel less alone
- You prefer virtual only, local only, or occasional travel (all are okay)
- You are comfortable starting small (even 5 to 10 minutes)
- No public speaking experience needed.
What speakers might do
Depending on your comfort level, speakers may be invited to:
- Join a hospital or community support group as a guest speaker
- Participate in a small panel with other patients or caregivers
- Share a short story followed by general Q and A
- Speak virtually or in person
- You decide what you say yes to. You can say no anytime.
What you might talk about
Speakers typically share lived experience, such as:
- The early days before and after implant
- Daily life with equipment and routines
- The emotional side for patients and caregivers
- What helped, what surprised you, and what you wish you knew
- How you found strength, support, or meaning
Important boundaries
This is about lived experience, not medical guidance.
- Speakers share personal experience only
- Speakers do not provide medical advice
- Hosts maintain clinical oversight for any clinical topics
- LVADStrong is a connector, not a clinical provider
How we will support speakers
As we build the program, we are putting together:
- A short orientation and expectations
- Simple topic prompts to make speaking easier
- A code of conduct focused on respect and privacy
- Options for anonymity and virtual participation when possible
- Clear agreements with host organizations so speakers feel protected
How to raise your hand
If you are interested, please fill out the quick form. This is not a commitment to speak. It is just a way to tell us:
- a little about your story
- what you would be open to
- how we can contact you
FAQ
Is this official yet?
We are actively building it now. Your interest helps us shape the final program.
Do I have to be polished or positive?
No. Real and respectful is what matters.
Will you share my story publicly?
Not without your permission. This form is only to start a conversation.
Is this paid?
This is expected to be volunteer. If any event includes reimbursement, we will be transparent before you agree.
What happens after I submit?
We will follow up to learn about your story and your comfort level and to explain what opportunities exist.
